2010 video description of ADAPT and why anger is still essential.
2010 video description of ADAPT and why anger is still essential. ADAPT is working to end the Medicaid bias in the nation's Medicaid system. The current legislation is called the Community Choice Act. Video from years of ADAPT demonstrations.
There is an institutional bias in our society that has needlessly forced many people into nursing homes when other options such as in home personal care services would be cheaper. Having the choice to live in your own home and not a nursing home, is not just a quality of life issue. It is a life issue.
Jodi James understood that. A few years ago, when Jodi and I were meeting with Roland Sykes and discussing the problem of the institutional bias. She shared with everyone present how close she came to being forced into a nursing home. Jodi understood how fortunate she was to have avoided institutionalization.
At the time of her death, Jodi James was an active and respected member of her community. She touched the lives of many as the disability student services coordinator at a University. She was a supporter of onecandream.com member of ADAPT, and a wonderful advocate who cared first and foremost about ensuring that others had the opportunities she had. She was a tremendous asset to her community... I have to wonder how many assets we are loosing, and how many people are not reaching their fullest potential simply because of a systemic institutional bias that presumes the often more expensive nursing home care will be paid for, but does not make the same assumption that the often cheaper in home personal care services will be paid for.
I worked very closely with Jodi James to try and improve the situation for people with disabilities not just in my community, or even my state... but across the country. The Indiana Statewide Independent Living Council once condemned Jodi when she went to for going to an ADAPT action. They said she had an "AGENDA" though they never clarified what that meant.
I will tell you what Jodi's agenda was. Her agenda was to improve the quality of life for folks with disabilities like herself, and do what she could to ensure that none of us, herself included, would be stuck with no other options besides a nursing home.
That said, when people are not even given the choice to live in the community, (Which is what the Community Choice Act is all about), then it is not just the individual's quality of life that suffers -- we all do.
If Jodi James were here, she would tell you herself how important it is that people have the freedom of community choice. Jodi James was proud to be a member of ADAPT, and we here at onecandream feel privileged, proud, and honored she was on our team.
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